PROFILE
PROJECTS

LEPRA SOCIETY

FACTS ABOUT LEPROSY

  • Leprosy still exists in India
  • Leprosy is completely curable with Multi Drug Treatment
  • Every 4 minutes one new leprosy case is detected in India.
  • 12043 child cases were recorded in 2013-14.
  • 5256 Gr. II disability detected amongst the New Leprosy cases during 2013-14
  • 1.27 lakh new cases were detected during year 2013-14.
  • Leprosy is a chronic disease caused by a slow multiplying bacillus, Mycobacterium leprae.
  • M. leprae multiplies slowly and the incubation period of the disease is about 5 years. Symptoms can take as long as 20 years to appear.
  • The disease mainly affects the skin, the peripheral nerves, mucosa of the upper respiratory tract and also the eyes.
  • Leprosy is curable.
  • Although not highly infectious, it is transmitted via droplets, from the nose and mouth, during close and frequent contacts with untreated cases.
  • Early diagnosis and treatment with multidrug therapy (MDT) remain key in eliminating the disease as a public health concern
  • Untreated, leprosy can cause progressive and permanent damage to the skin, nerves, limbs and eyes.
  • During the reporting year 2013-2014, LEPRA Society has provided services to the leprosy affected persons operational in Andhra Pradesh, Bihar, Delhi, Jharkhand, Madhya Pradesh and Odisha. The services were provided at free of cost at the projects. The details are mentioned in the below given table.

Particulars

Persons affected treated – 2013-2014

Persons affected availed services outpatient department at leprosy referral services

26,944

New leprosy cases detected at the referral centres

1,179

Treatment of complication cases

1,508

Restored functional ability through reconstructive surgery

542

Ulcers treated

3,900

Adoptive devices &appliance was provided to persons affected for prevention of worsening of disabilities

5,980

Protective footwear made of micro cellular rubber provided to persons affected

12,438

PROMISING PRACTICES IN HEALTH CARE

Social Audit

A social audit is a way of measuring, understanding, reporting and ultimately improving an organization’s social and ethical performance. A social audit helps to narrow gaps between vision/goal and reality, between efficiency and effectiveness. It is a technique to understand, measure, verify, report on and to improve the social performance of the organization.

Social Audit is a process, in which the details of the resources, financial and non-financial, used by the public agencies for the development initiatives, is shared with the people, often through a public platform. It allows people to enforce transparency and accountability, thereby providing the ultimate users an opportunity to scrutinize the development initiatives.

Social auditing creates an impact upon governance. It values the voice of stakeholders, including marginalized/poor groups whose voices are rarely heard. Social auditing is taken up for the purpose of enhancing local governance, particularly for strengthening accountability and transparency in local bodies.

Social Audit was adopted and conducted by LEPRA Society for the first time in its projects in 2011 in following projects:

  • Leprosy Referral Unit in Munger district of Bihar in 2012
  • Technical Resource Unit & Strengthening Referral System in 2011 in Odisha.
  • Feedback from the community.
  • I checked all documents related to purchase of materials for footwear for the past 3 years. All vouchers and entries are correct. Checked with 6 patient records and found all entries correct including MCR Foot wear – Mukhia Sujawal Pur, Munger district Bihar.

Advocacy

  • Addressing the issues of Persons Affected by Leprosy
  • LEPRA Society in August 2012 worked with Mr. Sarang, State Leder Leprosy Forum MP to raise the profile of persons affected by leprosy. He was supported in organising the programme during the visit of mr. Sasakawa, WHO Goodwill Ambassador, Chairman, The Nippon Foundation, to Bhopal and to meet the Honourable Chief Minister and health minster and Human Rights Commissioner to address the issues of person affected by leprosy living in leprosy colonies and enhancement in disability pension.

EVENTS

  • LEPRA Society organises various event to mark World Leprosy Day to raise the profile of the disease and muster support from the community to fight discrimination of persons affected by leprosy. A campaign on “leprosy walk” organised in Bihar, Bhopal in addition to regular campaigns at Hyderabad and encouraged persons affected by leprosy to act as key stakeholders. Around 1,300 perssons from all walks of life including persons affected by leprosy, corporates, schools, colleges, nursing students, staff of LEPRA Society, participated in the walk. They generated awareness and demonstrated solidarity towards the persons affected by leprosy against discrimination and stigma.

Founding Trustees

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# 58, 4th Cross, Kavery Layout, Thavarekere Main Road, Dhramaram College Post, Bangalore 560029

080 60122243 / 25533050, info@goodbyeleprosy.org, www.goodbyeleprosy.org